Monday, January 23, 2012

Murphy's Law

Rule #72:  Just when you think it can't get worse...it does.

I've been putting off this post.

A couple of weeks ago, we had an appointment with youngest daughter's GI doctor.  It was a follow-up visit after her hospital stay.


My daughter has an awesome doctor at Seattle Children's.  She's one of the top GI specialists in the region.  I will be very sad when we have to transition out of Children's to the University of Washington.

Youngest daughter developed ascites (fluid in the abdomen) over Christmas.  It's a complication that means that her liver is starting to fail.  From here on out, it's going to be downhill until a transplant, which her doctor estimates will probably need to happen within the year.  This means that she will most likely go onto the transplant list within the next few months.

Youngest daughter says she's glad, in a way.  She's felt at times that she's just been waiting for something to happen, and she's sick and tired of being sick and tired.  I understand that, though my feelings have been more like concern/anticipation/apprehension/terror.  I know that she's going to get much sicker before she gets better, and it scares me. 

Thank you to all of you that have lifted us up in prayer.

Saturday, January 7, 2012

A belated New Year's


This is just my personal opinion, but I was ready to see this year end.
We spent Christmas with youngest daughter in the hospital.  She hadn't been feeling well for a few days, and her abdomen was bloated (She went from normal to looking about 6 months pregnant, to give you a rough idea).  So I made a Christmas Eve run to Seattle Childrens, where she was admitted and put on diuretics.  She was there until the day after Christmas, so as you can imagine, that threw off our Christmas plans. The diagnosis was ascites-fluid in the abdomen.  This is a complication of her liver issues.  It's a little scary, because I know it's one more step toward the transplant list.  She was in meltdown mode emotionally, so the two of us took a few days and went on a "mental health" trip for a few days.  It did help her emotionally, and we didn't kill each other, so it was good.

So, I am definitely hoping for a less stressful 2012.  I hope your year is blessed!