Rule #72: Just when you think it can't get worse...it does.
I've been putting off this post.
A couple of weeks ago, we had an appointment with youngest daughter's GI doctor. It was a follow-up visit after her hospital stay.
My daughter has an awesome doctor at Seattle Children's. She's one of the top GI specialists in the region. I will be very sad when we have to transition out of Children's to the University of Washington.
Youngest daughter developed ascites (fluid in the abdomen) over Christmas. It's a complication that means that her liver is starting to fail. From here on out, it's going to be downhill until a transplant, which her doctor estimates will probably need to happen within the year. This means that she will most likely go onto the transplant list within the next few months.
Youngest daughter says she's glad, in a way. She's felt at times that she's just been waiting for something to happen, and she's sick and tired of being sick and tired. I understand that, though my feelings have been more like concern/anticipation/apprehension/terror. I know that she's going to get much sicker before she gets better, and it scares me.
Thank you to all of you that have lifted us up in prayer.